COVID-19 dermatology registry

Thank you for agreeing to take part in this important effort on behalf of the American Academy of Dermatology and the International League of Dermatologic Societies. Our hope is that information you and others provide will help us understand dermatologic manifestations of the COVID-19 virus, as well as skin reactions to the COVID-19 vaccine. This survey is for all health care professionals taking care of either (a) COVID-19 patients who develop dermatologic manifestations, including patients with “long COVID,” (b) dermatology patients with an existing condition who then develop COVID-19, or (c) patients who have received the COVID-19 vaccine and developed a skin reaction that you wish to report.

The case report form should take about 5-7 minutes to complete. Patient identifiers such as name or date of birth will not be collected. All de-identified information will be kept strictly confidential and will only be shared with researchers compiling information. Data will be stored on a secure Redcap server at Massachusetts General Hospital (Partners Healthcare). Information and updates will be shared via the COVID-19 American Academy of Dermatology website.

The success of this collaborative effort depends on active participation by our international health care community to obtain accurate and reliable information. This registry is for health care professionals from all countries. We ask that you share this site with your colleagues and encourage them to report any cases of COVID-19 related dermatoses.

By clicking on this link, you acknowledge and agree that the American Academy of Dermatology is not responsible for the collection, maintenance, use, analysis, or disclosure of the data you submit to the Harvard Derm-COVID-19 database, and that you are responsible for ensuring that you have the authority to submit the data you provide to the database and for de-identifying any Protected Health Information that you submit to the database in accordance with the applicable HIPAA regulations. Contact covidregistry@aad.org with questions.

Looking for more information? Read our FAQs. Want to know who we are? Read about our leadership. Want to analyze registry data? Learn about our data request process.

Numerous studies have resulted from the registry. Review our current bibliography below.

1. Freeman EE, McMahon DE, Fitzgerald ME, Fox LP, Rosenbach M, Takeshita J, French LE, Thiers BH, Hruza GJ. The AAD Covid-19 Registry: Crowdsourcing Dermatology in the Age of Covid-19. JAAD. 2020 April;83(2):509-10.

2. Freeman EE, McMahon DE, Fitzgerald ME, Lipoff JB, Rosenbach M, Kovarik C, Takeshita J, French LE, Thiers BH, Hruza GJ, Fox LP. Pernio-like skin lesions associated with COVID-19: a case series of 318 patients from 8 countries. JAAD. 2020 May;83(2):486–92.

3. Freeman EE, McMahon DE, Hruza GJ, Irvine AD, Spuls PI, Smith CH, Mahil SK, Castelo-Soccio L, Cordoro KM, Lara-Corrales I, Naik HB, Alhusayen R, Ingram JR, Feldman SR, Balogh EA, Kappelman MD, Wall D, Meah N, Sinclair R, Beylot-Barry M, Fitzgerald M, French LE, Lim HW, Griffiths CEM, Flohr C. International collaboration and rapid harmonization across dermatologic COVID-19 registries. JAAD. 2020 Jun 17;83(3):e261-66.

4. Freeman EE, McMahon DE, Fitzgerald ME, Lipoff JB, Rosenbach M, Kovarik C, Desai S, Harp J, Takeshita J, French LE, Lim H, Thiers BH, Hruza GJ, Fox LP. The spectrum of COVID-19-associated dermatologic manifestations: an international registry of 716 patients from 31 countries. JAAD. 2020 July 2;83(4):1118-29.

5. Mahil SK, Dand N, Mason KJ, Yiu ZZN, Tsakok T, Meynell F, Coker B, McAteer H, Moorhead L, Mackenzie T, Rossi MT, Rivera R, Mahe E, Carugno A, Magnano M, Rech G, Balogh EA, Feldman SR, De La Cruz C, Choon SE, Naldi L, Lambert J, Spuls P, Jullien D, Bachelez H, McMahon DE, Freeman EE, Gisondi P, Puig L, Warren RB, Di Meglio P, Langan SM, Capon F, Griffiths CEM, Barker JN, Smith CH. Factors associated with adverse COVID-19 outcomes in patients with psoriasis-insights from a global registry-based study. J Allergy Clin Immunol. 2021 Jan;147(1):60-71.

6. Freeman EE, McMahon DE, Hruza GJ, Lipoff JB, French LE, Fox LP, Fassett MS. Timing of PCR and antibody testing in patients with COVID-19-associated dermatologic manifestations. J Am Acad Dermatol. 2021 Feb;84(2):505-7

7. Freeman EE, McMahon DE, Fox LP. Emerging Evidence of the Direct Association Between COVID-19 and Chilblains. JAMA Dermatol. 2021 Feb 1;157(2):238-9.

8. Freeman EE, McMahon DE, Desai SR, Fox LP. Reply To "Comment on 'The spectrum of COVID-19-associated dermatologic manifestations: an international registry of 716 patients from 31 countries'". J Am Acad Dermatol. 2021 Feb 25; [Epub ahead of print.]

9. McMahon DE, Gallman AE, Hruza GJ, Rosenbach M, Lipoff JB, Desai SR, French LE, Lim H, Cyster JG, Fox LP, Fassett MS, Freeman EE. Long COVID in the skin: a registry analysis of COVID-19 dermatological duration. Lancet Infect Dis. 2021 Mar;21(3):313-4.

10. Freeman EE, McMahon DE, Lipoff JB, Rosenbach M, Desai SR, Fassett M, French LE, Lim HW, Hruza GJ, Fox LP. Cold and COVID: Recurrent Pernio during the COVID-19 Pandemic. Br J Dermatol. 2021 Mar 3;[Epub ahead of print]

11. McMahon, Devon E., Amerson, E., Rosenbach, M., Lipoff, J.B., Moustafa, D., Tyagi, A., Desai, S.R., French, L.E., Lim, H.W., Thiers, B.H., Hruza, G.J., Blumenthal, K.G., Fox, L.P., Freeman, E.E., 2021. Cutaneous reactions reported after Moderna and Pfizer COVID-19 vaccination: A registry-based study of 414 cases. JAAD. 2021 April;85(1):46-55.

12. Lopez S, Vakharia P, Vandergriff T, Freeman EE, Vasquez R. Pernio after COVID-19 vaccination. Br J Dermatol. 2021.

13. Freeman EE, Chamberlin GC, McMahon DE, Hruza GJ, Wall D, Meah N, Sinclair R, Balogh EA, Feldman SR, Lowes MA, Marzano AV, Naik HB, Castelo-Soccio L, LaraCorrales I, Cordoro KM, Mahil SK, Griffiths CEM, Smith CH, Irvine AD, Spuls PI, Flohr C, French LE, Dermatology COVID-19 Registries: Updates and Future Directions, DERMATOLOGIC CLINICS. 2021.